Related links

 
Cancer Datasets

The Netherlands Cancer Registry
http://www.ikcnet.nl/page.php?id=237&nav_id=97
Greater Amsterdam Cancer Registry (with specific data on oa. prevalence and survival data on oral cancer)
http://www.ikcnet.nl/uploaded/FILES/IKA/kankerregistratie/overleving/3.xls
 
Journals & Publishing
British Medical Journal
bmj.com
Cancer Control Journal at Moffitt Cancer Center
www.moffitt.usf.edu/pubs/ccj/
Cancer Epidemiology Biomarkers & Prevention
cebp.aacrjournals.org/
eCancerMedicalScience - an open access cancer journal from the European Institute of Oncology
http://www.ecancermedicalscience.com/
Instructions to Authors in the Health Sciences
www.mco.edu/lib/instr/libinsta.html
Journal of the National Cancer Institute : Cancer Spectrum
jncicancerspectrum.oupjournals.org
Journal of Oral and Maxillofacial Surgery
www.joms.org/
Molecular Cancer Therapeutics
mct.aacrjournals.org/
New England Journal of Medicine
content.nejm.org/
OMIM - Online Mendelian Inheritance in Man
www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=OMIM
 
Online Information Sources
Abbreviations and Acronyms for Oncology: Medical Terminology for Cancer
http://www.staff.ncl.ac.uk/s.j.cotterill/medtm15a.htm
Abramson Cancer Center of the University of Pennsylvania
http://www.oncolink.upenn.edu/
American Cancer Society (where a patient can choose a cancer topic to learn about different types of cancer, risk factors, prevention, treatment [including Treatment Decision Tools], and more. It is also possible to read stories of hope from people whose lives have been touched by cancer and get the latest news).
http://www.cancer.org/docroot/LRN/LRN_0.asp?sitearea
Associazione Italiana Malati di Cancro, parenti ed amici
– Cancer of the nasal cavities, sinuses and mouth
http://www.aimac.it/informazioni/dst/visualizza.php?id_articolo=5648 (Italian)
Australian Science and Technology Heritage Centre - Esmond Venner Keogh Guide to Records
– Index part C (Cancer studies, etc.)
http://www.austehc.unimelb.edu.au/guides/keog/index_c.htm
Cancer links from the Best of the Web Directory, UK & Ireland
http://botw.org.uk/Health/Conditions_and_Diseases/Cancer/
Cancerindex.org – Guide to Information Resources for Cancer
http://www.cancerindex.org/clinks1.htm
Cancerindex.org - Cancer Information for Health Professionals
http://www.cancerindex.org/clinks21.htm
Cancerindex.org - Oral Cancer Information for Patients, Physicians and the Public
http://www.cancerindex.org/clinks2x.htm
Center for Current Research : Oral Cancer File
http://www.lifestages.com/health/oralcanc.html
Clinical Guidelines for Head and Neck Cancer : National Comprehensive Cancer Network (USA)
http://www.nccn.org/professionals/physician_gls/PDF/head-and-neck.pdf
Department of Health : Referral Guidelines for Suspected Cancer
http://www.dh.gov.uk/en/AdvanceSearchResult/index.htm?searchTerms=head+and+neck+cancer
Department of Health : Suspected Head & Neck Cancer Referral
http://www.dh.gov.uk/en/AdvanceSearchResult/index.htm?searchTerms=head+and+neck+cancer
European Association of Oral Medicine – Patient Information Leaflets (many by Prof. C. Scully)
www.eaom.net/app/prvt/VediArea.d/Area-115
Information and IT for the NHS
www.doh.gov.uk/ipu
Medic8.com
www.medic8.com
MEDLINEplus : Oral Cancer Information
www.nlm.nih.gov/medlineplus/oralcancer.html
Medicalconferences.com (Litton, Derbyshire) – Conference Listings
www.medicalconferences.com
Merck : Topics for Healthcare Professionals
www.merck.com/pro/
National Cancer Institute : Cancer Information Service
cis.nci.nih.gov
National Cancer Institute, USA : Head and Neck Home Page
http://www.cancer.gov/cancertopics/cancersbodylocation/page11
National Cancer Institute, USA : Search for literature on head and neck cancer
www.cancer.gov/search/search_cancertopics.aspx?listid=ca7b46be-75a0-4434-a52a-949d46153dc6
National Institute of Dental and Craniofacial Research (NIDCR)
campaign announcement
National Statistics Online : Cancer Map of the UK
http://www.statistics.gov.uk/statbase/Product.asp?vlnk=14059
NHS Centre for Reviews and Dissemination
www.york.ac.uk/inst/crd
OncoLink - Cancer Information, Research and Treatment : University of Pennsylvania
http://www.oncolink.org/
Oral Cancer Foundation : 'Cancer patients' mouth sores relieved in studies'
http://www.oralcancerfoundation.org/news/news2.htm
Oral Cancer Foundation : 'What's new in oral cancer research'
http://www.oralcancerfoundation.org/whats_new_in_oralcavity.htm
Restorative Dentistry Oncology Clinic
www.rdoc.org.uk/
Royal College of Surgeons in Ireland : Library
www.rcsi.ie/library/
Skin Cancer and Benign Tumor Image Atlas : Layola University Education Network
http://www.meddean.luc.edu/lumen/MedEd/medicine/dermatology/content.htm
Support for People with Oral and Head and Neck Cancer
www.spohnc.org
UK Clinical Ethics Network – often updated, many links.
www.ethics-network.org.uk
UK Medicines Information
www.ukmi.nhs.uk
University of York - NHS Centre for Reviews and Dissemination
www.york.ac.uk/inst/crd
 
Oral Cancer
CancerBACUP online : European cancer information service with practical advice and support for cancer patients, their families and carers.
www.cancerbacup.org.uk
Cancer Information Network (www.thecancer.info) – Oral and Pharyngeal Cancer
www.ontumor.com/oral/index.htm
Center for Current Research, Oral Cancer File
www.lifestages.com/health/oralcanc.html
Dentista online – Oral Cancer
www.dentista.it/html/articoloVis.asp?codart=253 (Italian)
Maxillofacial Center (W. Virginia, U.S.A.) – Precancers of the Head and Neck
http://www.maxillofacialcenter.com/precancer.html
MEDLINEplus : Oral Cancer Information
www.nlm.nih.gov/medlineplus/oralcancer.html
Mouth Cancer Foundation: Initiative of the Restorative Dentistry Oncology Clinic
www.rdoc.org.uk
Mouth Cancer Foundation website: UK based mouth cancer website portal that provides patients, carers and health professionals with easy access to comprehensive information on head and neck cancers and mouth cancer awareness campaigns.
www.mouthcancerfoundation.org
Mouth Cancer Foundation Online Support Group: Provides practical advice and
support for cancer patients, their families and carers.
www.chat.mouthcancerfoundation.org
Multinational Association of Supportive Care in Cancer
www.mascc.org
National Cancer Institute, USA : Cancer Information Service
cis.nci.nih.gov
National Cancer Institute, USA : Search for literature on head and neck cancer
www.cancer.gov/search/search_cancertopics.aspx?listid=ca7b46be-75a0-4434-a52a-949d46153dc6
National Comprehensive Cancer Network (NCCN)
An alliance of 19 of the world's leading cancer centers, is an authoritative source of information to help patients and health professionals make informed decisions about cancer care. Through the collective expertise of its member institutions, the NCCN develops, updates, and disseminates a complete library of clinical practice guidelines.
www.nccn.org
Netherlands Cancer Institute: Werkgroep Hoofd-Hals Oncologie – English version, more limited than Dutch version. Oral Cancer – Problems, Prevention, Treatments and Web Links.
www.hoofdhalskanker.info/Patient-information.htm (Dutch)
NHS Centre for Reviews and Dissemination
www.york.ac.uk/inst/crd
Oral Cancer Foundation
www.oralcancerfoundation.org
Oral Cancer Foundation : 'Cancer patients' mouth sores relieved in studies' http://www.oralcancerfoundation.org/news/news2.htm
Oral Cancer Foundation : 'What's new in oral cancer research' http://www.oralcancerfoundation.org/whats_new_in_oralcavity.htm
Oral Cancer - Prevention and Detection
www.gla.ac.uk/Acad/Dental/OralCancer
Pohlhaus, Steven R. – Oral Cancer Information
www.stevedds.com/oral.htm
Società Italiana di Patologia e Medicina Orale – Oral Cancer
www.sipmo.it/app/prvt/VediFile.d/File-92/FAQ%20ca%20iper.pdf (Italian)
University of Glasgow Dental School: Oral Cancer - Prevention and Detection
(set your screen to 1024 by 768 pixels)
www.gla.ac.uk/Acad/Dental/OralCancer
University of Manitoba - Oral Cancer Self Evaluation
http://www.proteethguard.com/dental-health-information-center/
West of Scotland Cancer Awareness Project – Mouth Cancer Training Materials
www.woscap.co.uk/nhsstaff/default.asp?p=da51
Yul Brynner Head and Neck Cancer Foundation
www.headandneck.org/
 
Oral Leukoplakia
Cochrane Library - Interventions for Treating Oral Leukoplakia (Cochrane Review)
- Lodi G, Sardella A, Bez C, Demarosi F, Carrassi A
www.cochrane.org/cochrane/revabstr/ab001829.htm
emedicine.com - Oral Leukoplakia, Idiopathic
www.emedicine.com/ent/topic731.htm
 
Head and Neck Cancer
Memorial Sloan-Kettering Cancer Centre
http://www.mskcc.org/mskcc/html/338.cfm
Head and Neck Cancer - information resource : M.D. Anderson Cancer Center, University of Texas
http://www.mdanderson.org/diseases/head_neck/
Head and Neck Cancer: Resection and Neck Dissection by Sanford Dubner, eMedicine.com
http://www.emedicine.com/plastic/topic370.htm
Improving Outcomes in Head and Neck Cancer - Guidance on Cancer Services : National Institute for Clinical Excellence
http://www.nice.org.uk/pdf/csghn_themanual.pdf
Lymphoma of the Head and Neck - Milos J. Janicek, MD, Madelieine D. Fraus, MD, Roman A. Klufas, MD : BrighamRAD
http://www.brighamrad.harvard.edu/Cases/bwh/hcache/47/full.html
 
Organizations
 
National Cancer Institute
Cancer.gov
National Science Foundation (NSF)
nsf.gov
Royal College of Surgeons of England
www.rcseng.ac.uk
Royal College of Surgeons of Edinburgh
www.rcsed.ac.uk
Royal College of Surgeons in Ireland
www.rcsi.ie
 
Patient Support
Mouth Cancer Foundation
rdoc.org.uk/supportgroups.html
Oral Cancer Foundation
www.oralcancerfoundation.org
Support for People with head and neck cancer
www.spohnc.org
Yul Brynner Head and Neck Cancer Foundation
www.headandneck.org/
 
Talking with Patients
Oncotalk:improving oncologists' communication skills
www.oncotalk.info
European School of Oncology: International, Multilingual Online Training Programme in Psycho-Oncology www.cancerworld.org/CancerWorld/moduleStaticPage.aspx?id=2378&id_sito=1&id_stato=1
University of Texas MD Anderson Cancer Center: communication skills for medical professionals
www.mdanderson.org/departments/Neuro/dIndex.cfm?pn=0337644E-832A-11D4-AEC800508BDCCE3A
Adjuvant! Online: decision making tools for health care professionals
www.adjuvantonline.com/index.jsp
 
Professional Associations
American Association of Oral and Maxillofacial Surgeons (AAOMS)
www.aaoms.org
American Association of Plastic Surgeons (AAPS)
www.aaps1921.org
American College of Oral and Maxillofacial Surgeons (ACOMS)
www.acoms.org
American Head and Neck Society
www.headandneckcancer.org
Association of Oral and Maxillofacial Surgeons of India
www.aomsi.com
Australian and New Zealand Association of Oral and Maxillofacial Surgeons (ANZAOMS)
www.anzaoms.org
Australian and New Zealand Head and Neck Society
www.anzhns.org
Australian Society of Otolaryngology Head and Neck Surgery
www.asohns.org.au
British Association of Head & Neck Oncologists
www.bahno.org.uk
British Association of Head & Neck Oncology Nurses
www.bahnon.org.uk
British Association of Oral and Maxillofacial Surgeons
www.baoms.org.uk
British Association of Otorhinorlaryngologists Head and Neck Surgeons
www.orl-baohns.org
British Society for Disability and Oral Health
www.bsdh.org.uk
British Society for Oral and Maxillofacial Pathology
www.bsomp.org
British Society for Oral Medicine
www.bsom.org.uk
European Association for Cranio-Maxillofacial Surgery
www.midthird.demon.co.uk/EACMFS.html
European Laryngological Society
www.md.ucl.ac.be/mont/chirurg/orl/larynx/els
European Association of Oral Medicine
www.eaom.net
European Organisation for Research and Treatment for Cancer
www.eortc.be
Indian Society Of Head and Neck Oncology
www.ishno.com
International Association of Oral and Maxillofacial Surgeons
www.iaoms.org
International Association of Oral Pathologists
www.iaop.com
International Federation of Head and Neck Oncologic Societies
www.ifhnos.org
Multinational Association of Supportive Care in Cancer
www.mascc.org
Oral Head and Neck Nurses Group (OHNNG) : an Australian organisation that provides educational opportunities for registered nurses and allied health professionals working in the specialty of Otolaryngology, Head and Neck Surgery.
www.ciap.health.nsw.gov.au/specialties/OHNNG/
Society of Otorhinolaryngology Head-Neck Nurses, Inc. (SOHN)
www.sohnnurse.com
South African Head and Neck Oncology Society (SAHNOS)
www.sahnos.co.za
Special Care Dentistry Association
www.scdonline.org
 
Telemedicine
Swinfen Charitable Trust
www.swinfencharitabletrust.com
 
Trials
Researchers at the National Institute of Dental and Craniofacial Research are investigating a new treatment for dry mouth.
The study is recruiting participants who are:
* Adults ages 18 and older
* Previously diagnosed with a cancer of the head and neck
* Experiencing dry mouth caused by radiation therapy
* Cancer-free (5 or more years)
* Not pregnant or breast feeding
* Non-smoker
This treatment involves the insertion of a gene into the remaining cells of the salivary gland. Research in animals has shown that this treatment can increase saliva flow for a short period of time with very few side effects.
More information about this study may be found at ClinicalTrials.gov.
http://www.clinicaltrials.gov/ct2/show/NCT00372320 or at a patient focused website: www.drymouthstudy.com .
Additional details can be obtained by contacting Dr. Bruce Baum at bbaum@dir.nidcr.nih.gov or Linda McCullagh MPH, RN at mccullaghl@nidcr.nih.gov .
NIH Clinical Trials patient information website
(http://www.drymouthstudy.com/)and clinicaltrials.gov site
(http://www.clinicaltrials.gov/ct/show/NCT00372320?order=1)